HIV Caregiver Research Study
Friends Research Institute is looking for individuals to participate in a clinical research study on caregivers for individuals living with HIV or AIDS.
Fast Facts
Main unpaid caregiver to a person living with HIV/AIDS and identify as African American
18+ Years Old
Compensation Provided
Conducted in Philadelphia, PA
OR
Remotely
Study Background
The purpose of the study is to develop a mobile app for smartphones designed to reduce caregiving stress for African American/Black informal caregivers of people living with HIV/AIDS.
If you volunteer to participate in this study, you will be provided with a study phone loaded with the MBSR app. You will be asked to use the app daily for 4 weeks. The app will provide you with information to assist with the following: a) stress assessment, b) stress reduction, c) caregiver activities, and d) positive support. This information will be provided through text, videos, interactive activities, or website links. The app is username and password protected to keep your privacy secure. Your data will not be stored locally on the smartphone. Instead, it is encrypted and directly transferred via the web to a secure, password-protected server accessible only to research staff.
Study Background
The purpose of the study is to develop a mobile app for smartphones designed to reduce caregiving stress for African American/Black informal caregivers of people living with HIV/AIDS.
You will be asked to use the app daily for 4 weeks. The app will provide you with information to assist with the following: a) stress assessment, b) stress reduction, c) caregiver activities, and d) positive support. This information will be provided through text, videos, interactive activities, or website links. The app is username and password protected to keep your privacy secure. Your data will not be stored locally on the smartphone. Instead, it is encrypted and directly transferred via the web to a secure, password-protected server accessible only to research staff.
There will be a separate Feasibility Trial lasting 4 weeks and Randomized Controlled Trial lasting 8 weeks. If you volunteer to participate in this study, you will be provided with a study phone loaded with the MBSR app.
Additional Information
The purpose of the study is to develop a mobile app for smartphones designed to reduce caregiving stress for African American/Black informal caregivers of people living with HIV/AIDS.
You may qualify for this study if you meet the following criteria.
Inclusion Criteria:
- Ages 18+
- Identify as Black or African American
- Main unpaid caregiver to a person living with HIV/AIDS
If selected for this study, you can expect the following:
Complete a comprehensive set of assessments, which will take approximately 30-60 minutes, at:
1) The beginning of the study (baseline)
2) At 4 weeks post-baseline to obtain your feedback regarding app usability, satisfaction, and suggestions for improvement.
Your participation in the study is complete after using the app for 4 weeks and completing the final survey afterward.
Compensation is up to $100.
You will receive a $50 gift card for completing the questionnaire at the beginning of the study (baseline) and another $50 gift card for completing a questionnaire at 4-weeks post-baseline for a total of $100.00.
There is no cost for you to participate in our research studies.