Research Study on Long Term Needs with Alzheimer's D/S and Dementia
Fast Facts
Experience Mild to Moderate Alzheimer's Disease or Dementia
Have A Caregiver and Live at Home
Compensation
Provided
Conducted in
Durham, NH
Study Background
Long-term Technology Needs with Caregiving for Alzheimer’s Disease / Dementia
The Long-term Technology Needs with Caregiving for Alzheimer’s Disease/Dementia study is an 18-month research project focused on understanding how Alzheimer’s disease and dementia progress among individuals living in the community, and how this progression affects their caregivers. Every two months, researchers will collect data through in-person assessments with care recipients—evaluating cognitive status, mobility, and functional wellbeing—and online questionnaires completed by caregivers, covering care burden, needs, and social wellbeing. This dual approach allows for a comprehensive understanding of both the physical and emotional aspects of caregiving over time.
The goal of the study is to identify the types and extent of technologies that can support caregivers throughout the course of the disease. By analyzing patterns in care needs and challenges, the research aims to inform the development or refinement of tools that can reduce caregiver burden, improve support systems, and help individuals with Alzheimer’s or dementia remain in their homes and communities for as long as possible.
Study Background
Long-term Technology Needs with Caregiving for Alzheimer’s Disease / Dementia
The Long-term Technology Needs with Caregiving for Alzheimer’s Disease/Dementia study is an 18-month research project focused on understanding how Alzheimer’s disease and dementia progress among individuals living in the community, and how this progression affects their caregivers. Every two months, researchers will collect data through in-person assessments with care recipients—evaluating cognitive status, mobility, and functional wellbeing—and online questionnaires completed by caregivers, covering care burden, needs, and social wellbeing. This dual approach allows for a comprehensive understanding of both the physical and emotional aspects of caregiving over time.
The goal of the study is to identify the types and extent of technologies that can support caregivers throughout the course of the disease. By analyzing patterns in care needs and challenges, the research aims to inform the development or refinement of tools that can reduce caregiver burden, improve support systems, and help individuals with Alzheimer’s or dementia remain in their homes and communities for as long as possible.
Additional Information
You or your loved one may be eligible for this study if the following criteria are met.
Inclusion Criteria:
- Experience mild to moderate Alzheimer’s disease or dementia
- Live at home
- Have a caregiver
If you choose to participate, here is what to expect:
Phone Screening: You will first complete a brief phone screening to determine your eligibility for the study.
Initial Visit: If eligible, a member of the study team will schedule an initial in-person visit with the care recipient to begin data collection.
Ongoing Study Visits: Every two months for 18 months (a total of 9 visits), the study team will visit the care recipient in person to assess cognitive status, mobility, and functional wellbeing (about one hour per visit).
Caregiver Questionnaires: At each two-month interval, caregivers will be asked to complete an online questionnaire about care burden, care needs, and social wellbeing.
Yes, you will be paid for participating in this study. Care partners will receive $100 every two months after each data collection, for a total of up to $900 over the full 18-month study period.
There is no cost for you to participate in our research study.