Autism & Intellectual Disability
Research Study

Researchers at Children’s Hospital Los Angeles are conducting a study on mental health and well-being for youth ages 11-17 who have autism and an intellectual disability. Families will share information about their child’s mental health, social experiences, and everyday activities. Researchers will also use simple brain activity tasks to learn more about how youth think and respond. The information collected may help improve future treatments and services for this community.

Fast Facts

Youth with autism & intellectual disability

Ages 11-17

Compensation
up to $300

Conducted in
Southern California

Additional Information

Many teens with autism experience challenges related to mood, anxiety, friendships, and daily life skills. However, there is still a need for more research focused specifically on youth who also have intellectual disability. By learning more about their experiences, researchers hope to identify patterns that can help guide better care and support.

Your family may be eligible for this study if your child meets the following criteria.

Inclusion Criteria:

  • Youth ages 11-17 with autism
  • Have an intellectual disability (e.g., Down syndrome, Fragile X syndrome, developmental delay)
  • One parent/legal guardian is able to participate in the study activities
  • Able to speak out loud
  • Step 1: Complete a short phone screening to see if your family is eligible

  • Step 2: Attend three in-person visits over about 6 months

  • Step 3: During each visit, both the teen and caregiver will complete interviews and surveys

  • Step 4: The teen will also complete simple EEG tasks that measure brain activity

  • Step 5: Each visit lasts about 4 hours and includes breaks

Yes. Families receive $100 per visit for up to $300 total in Target gift cards. Parking is covered for each visit. Families may also request a free psychological assessment report, and snacks and drinks are provided during visits.

There is no cost for your family to participate in our research study.