Hemophilia Research Study
Researchers at Oregon Health & Science University are conducting a study on menstruation and bleeding symptoms for women with a family history of Hemophilia A or bleeding disorders.
Fast Facts
Menstruating women
ages 18-45
Family History of Hemophilia and/or Bleeding Disorders
Compensation
Provided
Conducted in
Portland, OR
Study Background
Your period could help advance research in bleeding disorders.
Some women with a family history of Hemophilia A or other bleeding disorders experience symptoms that don’t line up with what lab results show. The CHARM Study is working to understand why that happens by analyzing menstrual blood samples, surveys, and a single blood draw.
By participating, you’ll be contributing to research that could improve how doctors diagnose and treat bleeding symptoms in women and people who menstruate. Your experience can help bridge the gap between symptoms and lab data—moving care toward a more accurate and personalized approach.
Study Background
Your period could help advance research in bleeding disorders.
Some women with a family history of Hemophilia A or other bleeding disorders experience symptoms that don’t line up with what lab results show. The CHARM Study is working to understand why that happens by analyzing menstrual blood samples, surveys, and a single blood draw.
By participating, you’ll be contributing to research that could improve how doctors diagnose and treat bleeding symptoms in women and people who menstruate. Your experience can help bridge the gap between symptoms and lab data—moving care toward a more accurate and personalized approach.
Additional Information
Researchers are trying to understand why some people with a family history of Hemophilia A experience abnormal bleeding, even when their lab levels (factor VIII) seem normal.
You may be eligible for this study if you meet the following criteria.
Inclusion Criteria:
- Menstruating individuals ages 18-45
- Family history of Hemophilia and/or bleeding disorders
- Having regular menstrual cycles
- Do not have an IUD
- No current anticoagulant/antiplatelet use
- If prescribed NSAIDs and/or antifibrinolytics, able to stop taking them
- Able to attend in person visits at an OHSU clinic
One in-person screening and enrollment visit at OHSU (90 minutes)
Drop off menstrual blood samples during your period using a free, provided menstrual cup
Complete two short surveys and a daily bleeding diary
One blood draw at the first sample drop-off visit
Additional drop-off visits (10 minutes each) for menstrual samples
Phone screening to confirm eligibility
Total compensation is approximately $245.
$25 for completing surveys and the bleeding diary
$25 for the blood draw
$40 for each day of sample drop-off
$75 bonus for completing all sample drop-offs
Participants will also receive a free menstrual cup and access to their blood work results. Please note that all study visits are held in person at an OHSU clinic in the Portland metro area, and travel must be arranged by the participant.
There is no cost for you to participate in our research study.
IRB#23749, PI: Kylee Martens, MD